Statement on Coronavirus from RGA medical board
During the current coronavirus pandemic it is essential that we all do our utmost to protect our own health and that of others. Everyone must follow the guidance that the government is issuing regularly. In particular it is important that people follow the guidance on regular hand washing and staying at home. We should only leave the house for essential shopping, for medical reasons or to attend work but only if this is essential and can’t be done from home. We can also go out for exercise once a day. We must stick to this as it is the thing which is most likely to reduce the length and severity of the pandemic.
We know that many RGA members are worried that being of restricted growth puts them at increased risk from coronavirus. If you are in a very high risk group you will already have been contacted by the government or your GP. Some of our members have breathing problems and may be at increased risk because of this. If you have concerns about this contact your GP or the doctor you normally see and they will be able to advise you. If they have particular concerns they can contact us on Medical@restrictedgrowth.co.uk. You can also contact us on that e-mail address, but it is important to talk to your own doctor first as they know you best. It may take us some time to reply to you as we are currently involved in responding to coronavirus in our own hospitals so if you have an urgent question talk to your doctor or call 111 and they will be able to advise you initially. Please also let us know by e-mail what is happening.
Most importantly at this time please look after yourselves and those around you. We will get through this but we will do that best if we care for one another in the coming weeks and months.
RGA medical advisory board.
Role models in the dwarfism community: Dr Judith Badner, MD
People with dwarfism are often stereotyped in popular media and culture. Yet our own voices are rarely heard; the full breadth of our contributions is rarely acknowledged. That’s why we embarked upon the RGA Dwarfism Role Models project – to amplify the voices of figureheads in our communities. In this installment, we had a chance to speak with the psychiatrist Dr Judith Badner, MD.Read More
Statement on the removal of the ‘M’word from Harper Collins publications.
With the Collaboration and huge efforts of Mark Trimbee, working with Eugene Grant of RGAUK and Rebecca Nuttall of Little People UK, we are delighted to announce that Harper Collins have listened and made the relevant changes needed to these titles. No ‘M’word exists in the reprints that have been published July 1st this year.
Well done and thank you all for your support.
Gillian Martin – Chair RGA UK
Statement on the Achondroplasia Drug Trial Publication
The results of the Phase 2 trial into the drug, Vosoritide, that could reduce the health complications of children with Achondroplasia was published in the New England Journal of Medicine on Tuesday 18th June 2019.Read More
Role models in the dwarfism community: Sofiya Cheyenne
People with dwarfism are often misrepresented in popular media and culture. Yet our own voices are rarely heard. That’s why we embarked upon the RGA Dwarfism Role Models project – to amplify the voices of figureheads in our communities. One person we’ve been admiring for a while is the performance artist and educator, Sofiya Cheyenne, who recently appeared in the Shakespeare Theatre Company’s Richard III. Here’s what she told us.Read More
Role models in the dwarfism community: Kiruna Stamell
People with dwarfism are often misrepresented in popular media and culture. Yet our own voices are rarely heard. That’s why we embarked upon the RGA Dwarfism Role Models project – to amplify the voices of figureheads in our communities. To mark the start of Dwarfism Awareness Month 2018, we spoke with Kiruna Stamell, actress and disability rights activist. Here’s what we learned. Read More
Q&A: RGA UK’s position on “m*dget wrestling”
Why is RGA UK protesting these “m*dget wrestling” events?
Read on.Read More
RGA UK responds to news of “m*dget wrestling” events in UK
RGA UK has learned that the “Extreme Dwarfanators Wrestling Show” – which often bills itself as “m*dget wrestling” – is touring the UK. Responding to the news, Chair of leading dwarfism charity, RGA UK, Gill Martin said…Read More
We did it! Thank you!
We did it! We reached our funding target!
We’re delighted to tell you that – with the help, kindness, and astonishing generosity of hundreds of people – we successfully reached our funding target so we may cover the costs of kids’ places at this year’s Mega Weekend.Read More
Important update about Mega Weekend 2018 and crowdfunding appeal
For several years now, we’ve been fortunate enough to receive support from Children In Need to subsidize children’s places at our events – allowing them to come for free. Unfortunately, this year our application for Children In Need funding was not successful. Sadly, this will affect the prices we must charge our members to attend our 2018 Mega Weekend.
This year, for the first time ever, we are asking for outside help.Read More