During the current coronavirus pandemic it is essential that we all do our utmost to protect our own health and that of others. Everyone must follow the guidance that the government is issuing regularly. In particular it is important that people follow the guidance on regular hand washing and staying at home. We should only leave the house for essential shopping, for medical reasons or to attend work but only if this is essential and can’t be done from home. We can also go out for exercise once a day. We must stick to this as it is the thing which is most likely to reduce the length and severity of the pandemic.
We know that many RGA members are worried that being of restricted growth puts them at increased risk from coronavirus. If you are in a very high risk group you will already have been contacted by the government or your GP. Some of our members have breathing problems and may be at increased risk because of this. If you have concerns about this contact your GP or the doctor you normally see and they will be able to advise you. If they have particular concerns they can contact us on Medical@restrictedgrowth.co.uk. You can also contact us on that e-mail address, but it is important to talk to your own doctor first as they know you best. It may take us some time to reply to you as we are currently involved in responding to coronavirus in our own hospitals so if you have an urgent question talk to your doctor or call 111 and they will be able to advise you initially. Please also let us know by e-mail what is happening.
Most importantly at this time please look after yourselves and those around you. We will get through this but we will do that best if we care for one another in the coming weeks and months.
RGA medical advisory board.
People with dwarfism are often stereotyped in popular media and culture. Yet our own voices are rarely heard; the full breadth of our contributions is rarely acknowledged. That’s why we embarked upon the RGA Dwarfism Role Models project – to amplify the voices of figureheads in our communities. In this installment, we had a chance to speak with the psychiatrist Dr Judith Badner, MD.Read More
With the Collaboration and huge efforts of Mark Trimbee, working with Eugene Grant of RGAUK and Rebecca Nuttall of Little People UK, we are delighted to announce that Harper Collins have listened and made the relevant changes needed to these titles. No ‘M’word exists in the reprints that have been published July 1st this year.
Well done and thank you all for your support.
Gillian Martin – Chair RGA UK
The results of the Phase 2 trial into the drug, Vosoritide, that could reduce the health complications of children with Achondroplasia was published in the New England Journal of Medicine on Tuesday 18th June 2019.Read More
It’s been a little while but we’re back with a fantastic new Role Model in the Dwarfism Community interview! This time, we had the privilege of speaking with Mia Ives-Rublee, a civil rights activist. Check out what she had to say. Read More
People with dwarfism are often misrepresented in media and popular culture. Yet our own voices are rarely heard. That’s why we started our Role Models in the Dwarfism Community series – to showcase figureheads in our own communities. Today, we spoke with Cara Reedy, writer, actor, producer and director.Read More
People with dwarfism are often misrepresented in popular media and culture. Yet our own voices are rarely heard. That’s why we embarked upon the RGA Dwarfism Role Models project – to amplify the voices of figureheads in our communities. For this, our latest instalment, we spoke with Joe Stramondo, Assistant Professor of Philosophy at San Diego State University.Read More
We’re back – with yet another great installment in our series of interviews with role models from the dwarfism community. This time we spoke to Vilissa Thompson – social worker, writer, and self-confessed “badass”. Check out what she had to say.Read More
Happy New Year! We’re back with a new installment in our series of interviews with role models in dwarfism communities. We spoke to artist and academic, Dr Debra Keenahan.Read More
We’re back with another great interview in our role models in the dwarfism community. This time, we spoke to Dr Will Christian – a consultant in paediatric emergency medicine – who had some excellent advice for us all. Read More